Help 4 Hd Live!

PRE-RECORDED It's been 18 months since the premiere of The HD View here on BlogTalkRadio. We have grown exponentally. It's fun to look back and listen again to its' beginning. 30,000 listeners like Help 4 HD - The HD View. Enjoy!

  PRE-RECORDED - # 4 BEST SHOW Our incredible special guest is the esteemed Andrea Zanko from UCSF - MAC. She received her Masters in genetic counseling from the University of California at Berkeley and her Bachelors Degree from Boston University. She's been a genetic counselor at UCSF in the medical genetics clinic for over 30 years and created the UCSF Huntington Disease Genetic Counseling Clinic in 1990. Andrea teaches at the UCSF medical school, facilitates a monthly HD support group and writes a column for the Northern California Chapter Nucleus newsletter.  Thank you Andrea for your exemplary care of our JH'Dears and H'Dears for so many years. We love you! http://www.ucsfhealth.org/andrea.zanko

PRE-RECORDED on August 13, 2012 - Our incredible special guest tonight is Gabrielle Hamilton, therapist, speaker, published author and Huntington’s Disease (HD) Activist. In 1994 Gabrielle joined the board of the Greater NY/LI Chapter of Huntington’s Disease Society of America. By 1995 she became the President and during her leadership the Chapter became the first to provide monies directly to the local HD Clinics to run social work support services—later called the Centers for Excellence.  Recently, she started writing her “Dear Gaby” column at TheHuntingtonsPost.org. Read her most recent column about testing at thehuntingtonspost.org/GabyArchive.html email your questions to her at [email protected] 

PRE-RECORDED -- MONDAY, September 17, 2012 In direct response to a previous show with Dr. LaVonne Goodman and information disseminated about the AAN (the American Academy of Neurology) Guidelines for Treating Chorea in Huntington's, (see report) Melissa Armstrong, MD, MSc and Gary Gronseth, MD, FAAN are here today to explain how the AAN Clinical Practice Guideline process works to deliver the best evidence-based recommendations to physicians who are treating for neurological disorders, in particular chorea in Huntington's disease. For more information about the American Academy of Neurology, visit www.aan.com.   We are honored, delighted and thrilled to have the prestigious American Academy of Neurology here with us today… About the AAN The American Academy of Neurology (AAN), established in 1948, is an international professional association of more than 25,000 neurologists and neuroscience professionals dedicated to promoting the highest quality patient-centered neurologic care.  

PRE-RECORDED Jody Goldstein has a very long list of accomplishments: BS in Biology from the University of California, San Diego (UCSD), 10 years as coordinator for the UCSD Huntington's Disease Clinical Research Center (HDCRC), Genetically Handicapped Persons Program (GHPP), facilitator for the San Diego Huntington's Disease Support Group and serves as Study Coordinator for more than 18 Huntington's disease clinical studies, 21 publications in peer reviewed journals... the list goes on and she's bilingual working with the local Hispanic HD community. Everyone should tune in for some very good information about the HSG Reach2HD clinical trial with Jody Goldstein and Elise Kayson from the Huntington Study Group (HSG). Don't forget to click 'Follow' on our show page and send this link to all your colleagues, friends and family. Thank you for listening to Help 4 HD - The HD View programs!

TUESDAY, September 4, 2012 It's time for the Ask Dr. Goodman show. Get your questions ready for another hour with our incredible Internist LaVonne Goodman. www.HDdrugworks.org

MONDAY, August 27, 2012 - 3:30 pm PDT/6:30 pm EDT Our amazing incredible guest today is the estemed Andrea Zanko, MS, LGC  - Genetic Counselor from UCSF (University of California, San Francisco). For over 30 years, she has been working with children and adults suspected or known to be affected by or at risk for genetic disorders.  She teaches at the medical school and helps train students and residents in medical genetics.   Andrea created the UCSF Huntington Disease Genetic Counseling Clinic in 1990 and continues to counsel individuals and families regarding Huntington Disease (HD).  The HD clinic also participates in research in association with the multi-disciplinary team at the USCF Memory and Aging Center.   Andrea also facilitates a monthly HD support group and writes a column for the Northern California Chapter Nucleus newsletter.     Andrea has two children, a white lab and a nearly 20 year old cat.  Her daughter is a physician in residency in southern California and her son is an artist still at

MONDAY, August 13, 2012 -- 3:30 pm PST/6:30 pm EST Gabrielle Hamilton is a therapist, Speaker and Huntington’s Disease (HD) Activist. Gabrielle became a Certified Social Worker in 1997 and began providing therapy to children and families through a community-based organization known as Safe Space. When her term ended in 1998, she left the Chapter to focus on her new son, Teddy, and her full-time profession. Throughout this time, she continued her volunteer work with The Hereditary Disease Foundation speaking at fundraisers, meetings with scientists, and participating in research studies. In 2008, Gabrielle published a children’s book entitled LILCO AND HIS MOMMY and began speaking with children and families in schools about parenting in the face of illness. She has recently opened a private practice providing therapeutic services to children, adults and geriatrics specializing in the management the stress associated with HD and other neurological disorders. Gabrielle’s mother, grandmother and aunt were all a

Wednesday, August 8, 2012 In direct response to previous shows and information disseminated about the AAN (the American Academy of Neurology) guidelines for treating chorea in Huntington's, Melissa Armstrong, MD, MSc and Gary Gronseth, MD, FAAN are here today to explain how the AAN Clinical Practice Guideline process works to deliver the best evidence-based recommendations to physicians who are treating for neurological disorders, in particular Huntington's disease.  About the AAN The American Academy of Neurology (AAN), established in 1948, is an international professional association of more than 25,000 neurologists and neuroscience professionals dedicated to promoting the highest quality patient-centered neurologic care. Gary S Gronseth, MD, FAAN Dr. Gronseth is a Professor of Neurology at the University of Kansas and has been involved with patient care and medical education for 25 years. Dr Gronseth is also the evidence-based medicine (EBM) methodologist for the American Academy of Neurology (AAN). He

MONDAY, August 6, 2012 -- 3:30 pm PST/6:30 pm EST It's time to ask Dr. Goodman anything about drugs and treatments for the symptoms of Huntington's disease. While there is no effective treatment to stop the progression of Huntington's disease and there is not cure, Dr. LaVonne Goodman is one of the leading authorities in her field. Please, gather your questions and tune in to the show. Call in on phone numbers: 310-982-4227 or toll-free 877-497-4103. You can listen to the show right from your iPhone iPad and/or through the free app: Help 4 HD. Get the app here: http://bit.ly/Lvt0YM. Get more resources, including Dr. Goodman's Treatment Algorithms here: http://bit.ly/Nt6Ya6

MONDAY, July 30, 2012 -- 3:30 pm PST/6:30 pm EST Jody Goldstein received her B.S. in Biology from the University of California, San Diego (UCSD).  For the last 10 years, Jody has served as the coordinator for the UCSD Huntington’s Disease Clinical Research Center (HDCRC), Genetically Handicapped Persons Program, Mini-Residency Program, Genetic Testing and Counseling Program and is a facilitator for the San Diego Huntington’s Disease Support Group.  She has been recognized nationally with appointments to numerous committees, including the Huntington’s Study Group Executive Committee. Jody has served as Study Coordinator for more than 18 Huntington’s disease (HD) clinical studies. She has 21 publications in peer reviewed journals and numerous abstracts from professional meetings.   Jody has been involved with providing educational in-services throughout community, introducing HD to those little or no previous knowledge of caring for individuals with HD, its genetic susceptibility, its clinical presentation, or

MONDAY, July 23, 2012 - 3:30 pm PST/6:30 pm EST BACK BY POPULAR DEMAND - Our incredible special guest is Jan A. Nolta, Ph.D., the Director of the Stem Cell Program at UC Davis School of Medicine, and directs the new Institute for Regenerative Cures. The UC Davis stem cell program has over 150 faculty members collaborating to work toward stem cell-related cures for a spectrum of diseases and injuries.   Dr. Nolta’s laboratory focuses on “bench to the bedside” research, and she has been involved in numerous clinical trials of cell therapy. In 1994 she developed her passion for cellular therapy by assisting with the first umbilical cord blood stem cell gene therapy trials for newborns with “bubble baby disease”, with her mentor Donald Kohn at Children’s Hospital of Los Angeles.   A scientist with more than 20 years’ experience with human stem cells, Dr. Nolta has published over 100 manuscripts in the stem cell field and has authored 25 book chapters. She has served on over 200 grant review panels for the Nation

MONDAY, July 23, 2012 - 3:30 pm PST/6:30 pm EST EXCITING NEWS! Dr. Jan Nolta will be here to give us an update on her stem cell clinical trial with PI Dr. Vicki Wheelock at UC Davis Medical Center. CIRM # 1 Scientific Score: Vicki Wheelock, UC Davis, $19 million, for development of a genetically modified cell therapy for Huntington's disease, an inherited neurodegenerative disorder. Scientific score 87. Read about it at the California Stem Cell Report http://californiastemcellreport.blogspot.com/2012/07 Read about it at CIRM (California Institute for Regenerative Medicine) http://cirm.ca.gov/ReviewSummary_DR2A-05415

MONDAY, July 16, 2012 - Tonight, our exciting special guest is Dr. Beth John. She is a doctor of chiropractic with 22 years’ experience treating patients using gentle chiropractic techniques as well as the more traditional techniques. Dr. John is also a certified nutritionist and owns a holistic health center in Farmingdale on Long Island NY. Her center offers: Chiropractic care, nutritional consult, Chinese herbal consult, Edgar Cayce analysis and appliances, and Safa. What is Safa you ask? We will be talking about that in just a few minutes. Sit back… you are listening to The HD View with Dr. Beth John…  Also visit the Safa Center

MONDAY, JULY 2 , 2012 Dr. LaVonne Goodman will be here this week to talk about her new article "Enroll-HD and the Cystic Fibrosis Model for Quality Care". Read more... www.HDDugWorks.org

MONDAY, June 25, 2012 - 3:30 pm PST/6:30 pm EST Tonight - an update from our amazing Huntington Study Group (HSG) Reach2HD clinical trial Principal Investigator (PI) Dr. Ray Dorsey and Dr. Caroline Herd, Chief Development Consultant from Prana Biotechnology. Reach2HD is a study to discover whether PBT2 (an investigational drug) is safe and effective and to determine PBT2's effect on cognition (thinking abilities) and other symptoms including movement and overall functioning. Tune in for a very informative update on Reach2HD another Huntington Study Group clinical trial. www.Huntington-Study-Group.org 

MONDAY, June 18, 2012 - 3:30 pm PST/6:30 pm EST Tonight we get to meet an incredible young man, Matt Austin, and his uncle, Adam Austin, who are setting out on the ride of their lives in a two-part bicycling adventure… a legacy journey… Starting on June 27 they will be traveling from NY to MA and then from CA to CO. Robert Rippberger is Producer/Director filming their story, A Ride With Matt. They will be donating proceeds of the documentary directly to HD clinics and Dr. Jan Nolta’s research at UC Davis Stem Cell Program. Tune in for a very inspiring bit of news... Find A Ride With Matt on Facebook

Monday, June 11, 2012 Our most incredible special guest tonight is Meta Orear. She received her certification as a Certified Professional Coach from Coaches Institute International (now The Fowler-Wainwright Institute). This is a wonderful method of objective questioning that leads to knowing how to achieve any goal you can imagine. She has also studied the Art of Listening with Joyah French of Inner Alchemy. These two powerful methods of inquiry form the foundation of her coaching practice.   She creates a vision statement for her clients based on their own words during the initial interview session. She records this statement for them to listen to every day to fully embody the wonderful life they are creating. The next sessions clarify their goals and their plan of action as they begin to live their dreams. She says best part of being a coach is watching her clients' successes. She gets to be a cheerleader and she is their biggest fan. She has other tools to share with her clients when, as a coach, she

Monday, June 4, 2012 Our subject tonight is about Huntington's disease and using supplements. See Dr. Goodman's latest article on Supplements and HD on her website at  www.hddrugworks.org.   Over the past decade a number of over-the-counter (OTC) supplements and prescription drugs have been reported to slow down progression of impairment in animal models of Huntington's disease (HD).  Whether Huntington's people "should" take supplements for potential human benefit with reported benefit is unknown. This author's opinion has evolved over the years and I am now more skeptical about using mouse model results than when we initiated the HDDW trials. What follows will be a supplement update. But -- to keep this discussion in perspective -- it is much more likely that a healthy life style will give greater benefit than any present supplement.Read more...  

MONDAY, MAY 29 - 2012, 3:30 pm PST/6:30 pm EST Stuart Blatt, MA. PT, Ph.D, from Howell MI, is a physical therapist with 25 years of clinical experience, treating persons with various neurological injuries. Dr. Blatt received his doctoral degree from Michigan State University in the area of Adult Learning. He is currently self employed as a physical therapist in his own company called Therapists on the Move which is a mobile outpatient clinic serving people with progressive neurological diseases (like Parkinson’s Huntington’s and MS). He is also the CEO and founder of A.S.C.E.N.D (Always Striving to Create Environments which Normalize Disabilities), a not for profit organization designed to promote clinically based research and a greater understanding of the care of people with progressive neurological diseases, through non-traditional programs. Dr. Blatt speaks nationally and within the state of Michigan on the care of person’s with Huntington’s Disease, Parkinson’s Disease and Multiple Sclerosis. Dr. Blat