Help 4 Hd Live!

MONDAY, MARCH 4, 2013 3:30 PM PT/6:30 PM ETDr. Goodman will be talking about:Anosognosia is the medical term for lack of self awareness of one's own disability or disease symptom. This condition, which is different from denial, occurs in many brain diseases including Huntington's disease (HD). Anosognosia is caused by nerve circuit damage to brain structures that interpret and organize information. Lack of awareness in HD creates problems that can range from refusal of therapy: "I don't need treatment if I'm not ill" to more extreme situations that can be dangerous for HD individuals or others. Families know that dealing with this symptom when it is severe -- is like walking through an emotional minefield, knowing the explosion is likely to come.Visit her website for the article she just posted: http://hddrugworks.org/

MONDAY FEBRUARY 18, 2013Happy Monday everyone and thank you for tuning in to Help 4 HD News Channel! This is your host, Melissa Biliardi. Please tell all your colleagues, friends and family about Help 4 HD Radio and click “Follow” on our Show Page to get email reminders of upcoming episodes. I want to thank our 50,350 listeners for tuning in!Help 4 HD News Channel Update is proud to bring the latest news to the community. We aim to address your questions and comments about current topics and trends with medical professionals and experts in the field of Huntington’s medicine and research.Recently, we have been inundated with questions about whether we should seek out off-label drugs and substances for the treatment of Huntington’s disease symptoms. And so tonight we have our very own amazing Dr. Goodman here to answer some of questions and concerns that came in from the community about that topic.Welcome to the show!

Monday, February 11, 20133:30 pm PT/6:30 pm ETTonight our dear friend Jimmy Pollard is back on the show with us. We will get to catch up with what he’s been up to in the last year. He is very involved in the history, culture, lore and folklore of Huntington’s disease working with the Woody Guthrie archives. We will get to hear about his latest project working in the archives. Interesting and poignant stuff! Stay tuned and welcome to The HD View…

Due to such an informative show, we are replaying of February 4, 2013 Show on February 7, 2013! Dr. Lavonne Goodman is back with us tonight on The HD View ~ Ask Dr. Goodman Show. Her knowledge and experience in treating Huntington's disease is a valuable asset to our community. Dr. Goodman has graciously agreed to offer her expertise every first Monday of the month, so please let’s take advantage of this time with her and get your questions together either in the chat room or call into the show. Tonight we will be talking about predictive testing for Huntington’s disease. Read Dr. Goodman’s newest article “Predictive Testing for Huntington’s disease” on her website at www.hddrugworks .org.

Monday, Feb 4, 2013 at 3:30 pm PT/6:30 pm ET. It's time to ask Dr. Goodman your questions tonight about HD testing. Read here newest article "Predictive Testing for Huntington's disease" on her website: www.hddrugworks.org. Tune in for another very informative and educational program with Dr. Goodman.

Monday, January 28, 2013 at 3:30 pm PT/5:30 CT/6:30 ET Our incredible special guest tonight is Dr. Peg Nopoulos from University of Iowa Hospitals and Clinics where her primary clinical work has been working in the HD Center of Excellence. She is currently a professor in Psychiatry, Pediatrics and Neurology and she is an active faculty member of our Neuroscience Graduate Program. In 2001 she developed a program, the Iowa Medical Student Research Program that she continues to direct. She is an accomplished researcher focusing on understanding brain and behavior, using state of the art brain imaging techniques, specifically Magnetic Resonance Imaging (MRI). Dr. Nopoulos is interested in aspects of understanding normal healthy brain such as differences in brain structure and function between the sexes as well as understanding how the brain changes with development through adolescence. She was our incredible special guest on April 23, 2012 http://www.blogtalkradio.com/help4hd/2012/04/23/the-jhd-view-with-dr-peg-n

Tonight our incredible special guest is Dr. Ira Shoulson founder of the Parkinson Study Group and the Huntington Study Group. Be sure to listen to our first interview with Dr. Shoulson on May 9, 2011. Dr. Shoulson is Professor of Neurology, Pharmacology and Human Science and Director of the Program for Regulatory Science and Medicine (PRSM) at Georgetown University.

MONDAY, JANUARY 14, 2013 3:30 pm PST/6:30 pm EST Happy New Year everyone and thank you for tuning in to Help 4 HD Radio! This is your host, MELISSA BILIARDI. Tonight our call-in numbers are 310-982-4227 and 877-497-4103. When you call-in press “1” and we will cue you into the show.  Thank you to all of our listeners for your support and interest in HELP 4 HD Radio. Our incredible sepcial guests tonight will be Dr. Ray Dorsey and Dr. Kevin Biglan. We will be discussing telemedicine (video conferencing) and the success they have had with their Parkinson's patients. Here is the list of topics: Barriers, esp geographic, to clinical care and research participation in research in HD How technology (e.g., web-based video conferencing) can overcome some of these barriers Our experience doing so in Parkinson disease Our (limited) experience in HD Future directions

MONDAY, JANUARY 7, 2013 3:30 pm PST/6:30 pm EST Tonight our incredible Dr. LaVonne Goodman is back for a new season of  the "Ask Dr. Goodman Show". Her knowledge and experience in treating Huntington's disease is a valuable and viable asset to our community. We are so blessed to have her return for a new season of continuing education and care for our beloved HD families. Tonight we will hear about "A Clinical Research Workshop" Symposium presented by the Huntington Study Group (HSG), HDSA and Huntington's Disease Drug Works (Dr. Goodman) which took place in Seattle on November 10, 2012. It was attended by more than 250 individuals from Huntington's disease families and friends of HD. Featured Keynote addresses that day were by: LaVonne Goodman, MD, Huntington's Disease Drug Works Charles Sabine, HD Advocate Mary Edmondson, MD, Duke University Medical Center Ashwini Rao, EdD, OTR, Columbia University Pierre Tariot, MD, Banner Alzheimer's Institute Blair Leavitt, MD, University of British Columbia T

MONDAY, December 24, 2012 PRE-RECORDED I thought it befitting to re-run the show I did with author of "The Butterfly Ball", Wanda Marie Clarke. In the honor and memory of all of those who have been lost, whether in physical body or mind, this program reminds me to look for God first. Wanda is the most lovely and delightful yet spirit-fill woman I know. I hope you enjoy listening to her interview about spiritual gifts and the meanings of names. Have a very blessed Holiday Season, Merry Christmas and Happy New Year! Find Wanda's Book, "The Butterfly Ball" http://bit.ly/TiZiZt Find Wanda's articles on The Huntington's Post: http://thehuntingtonspost.org/ http://thehuntingtonspost.org/Wanda.html Find "The Book of Names" by Dorothy Astoria http://amzn.to/Tnf6PR

MONDAY, December 17, 2012 Tonight our incredible special guest is patient advocate, Jenni Davis. She is the Oncology Counselor and Patient Advocate for Mission Hope Cancer Center in Santa Maria, California. With 20 years experience in the Worker's Compensation field as a vocational rehabilitation counselor she has a great knowledge of community resources and has coordinated and facilitated support groups, educational programs and financial resources for cancer patients, their families and caregivers. We welcome Jenni as a vetted caregiver support group leader and call on her experience and knowledge to help our Huntington's community. The philosophy is that all caregivers whether for cancer or HD have the same issues of stress and face many challenges in caring for their patients. Thank you Jenni for caring to share your lifes' work and experience with us. www.missionhopecancercenter.com

MONDAY, December 10, 2012 3:30 pm PST/6:30 pm EST Katie Jackson, author of "Ferris Wheel" will be on the show to talk about her e-book fundraiser on www.Research4HD.org. 100 percent of the net proceeds will go to Dr. Jan Nolta's Stem Cell Program for the upcoming clinical trial for Huntington's disease. Research4HD will be launching its' first fundraising campaign with Katie Jackson leading the charge and we will also get to talk with Dr. Jan Nolta tonight too!. It's going to be an awesome show!

MONDAY - DEC 3, 2012 Pre-recorded on October 10, 2011 - Dr. Jane Paulson and Stacie Vik from the University of Iowa talk about the Natural History Study at UI. The University of Iowa is currently recruiting individuals who have shown features of JHD before the age of 20 to be a part of a Natural History Study to research the effectiveness of clinical measurements relating to Juvenile Huntington’s Disease. This study will compare the current adult version of the Unified Huntington’s Disease Rating Scale (UHDRS ‘99) with a new modified version specifically developed for the JHD population. The purpose of this research study is to better understand JHD, and to improve the currently available tools to follow the course of the disease in this younger age group. Both parents and individuals affected by JHD who are interested in being involved in this research project are encouraged to contact Michelle Harreld at 319-384-1174 or [email protected] for more information. Dr. Jane Paulsen

MONDAY, NOVEMBER 26 2012 Tonight our incredible special guest is Wanda Marie Clarke, author, "The Butterfly Ball" and Contributing Writer at The Huntington's Post. Huntington's disease just happens to be in her family and so she knows all too well the importance of having a strong relationship with God and family. We are going to be discussing ways in which she discovered her spiritual gifts, one being her amazing command of the written Word/word and discerning spiritual gifts in others. She talks about the significance of her name and the many names of God in her recent article at The Huntington's Post, "What's in a Name?" Read her article: http://thehuntingtonspost.org/WhatsInAName.html I can't wait to talk to Wanda about how we can discover our own spiritual gifts. Find Wanda Marie Clarke on Facebook/TheButterflyBall

MONDAY, NOV 19 2012 Matt Austin will be here today to give us an update on their film project, "A Ride With Matt". Together with Matt's brother Adam and producer Robert Rippberger we are going to have a lot of fun discussing the bike tour and how they filmed it. Tune in to find out what's next for "A Ride With Matt"

MONDAY, NOVEMBER 12, 2012 (3:30 pm PST/6:30 pm EST) We are excited to present a Reach2HD update from the following amazing individuals: Dr. Martha Nance is the Director of the HD COE. She is a co-author of “The Physician’s Guide to HD” and “The Juvenile HD Handbook”, and a past member of the Executive Committee of the Huntington Study Group.  She is a member of the Steering Committee of Predict-HD and Enroll-HD, and has been a participant in many HD clinical research trials over the last 20 years. Sarah Janicki is an Assistant Professor in the Department of Neurology at Columbia University Medical Center. Dr. Janicki spent part of her fellowship training in the HDSA Center of Excellence at Columbia, and was happy to rejoin the staff there in early 2011 as a faculty member. Her research involves the effects of hormones and gender on neurodegenerative disorders. Ronda Clouse, RN  joined the HD team at Columbia  in 2004.  She has 25 years of research experience working with cognitively impaired neurological and

MONDAY - NOVEMBER 5 2012 - NEW SEASON! New season, new show, new format! Tune in at 3:30 pm PST/6:30 pm EST for the third season premiere of Help 4 HD - The HD View. Tonight, Host Melissa Biliardi will be interviewed by Producer James Valvano. Hear about the favorite shows, the history and highlights of the past two seasons and the development of Melissa's newest advocacy project: www.Research4HD.org. We want to hear from you! What do you want to learn about this year? Do you have subjects that you wish the community to discuss? What researchers, foundations and clinics do you want to hear from? The sky is the limit. This show is for YOU! Contact me at:   http://help4hd-international.org/ContactMe.html

PRE-RECORDED - April 2011 Our incredible special guest today is the amazing James Valvano whom we all know and love as a true HD warrior. He has invited us into his psyche with his book One With The Blue and  brought us out of the proverbial closet with his films, The Faceless Faces of Huntington's Disease and The Faces of Huntington’s Disease: I Am No Longer a Faceless Face, by igniting the HD community all over the world on Facebook Vimeo and Youtube. James is so passionate and inventive about communicating with our H’Dears that he created James Talk Video, a weekly video blog and James Talk Info Bits which is all about what’s happening NOW in the HD world of advocacy. If you have ever heard the term, "I have Huntington's Disease, but Huntington's Disease doesn't have me"... it came from James Valvano and every bit of that is true! In this episode James talks about his advocacy work for Jane Kogan, Advocacy Manager at HDSA. Tune in for a really great show. Visit: www.WeHaveAFace.org

PRE-RECORDED 9-4-12 Tonight we will be discussing a little controversial subject Lithium. Read Dr. Goodman’s new article on her website at www.hddrugworks.org titled: NP03 Lithium: A Potential New Drug for HD NP03 is a new drug from Medesis Pharma that delivers lithium in a water and oil microemulsion that allows for much lower (15X lower) therapeutic dosing. Barring future problems, this drug may be on its way to study in people. Link:  http://bit.ly/R3BueM Lithium is so toxic, why revisit this drug reformulated in a lower (15X lower) dose? In May this year we talk about mouse models and the fact that therapeutic benefits may not carry over to human. Why try to formulate old drugs? What can you tell us about YAC mouse model? Are you familiar with Medesis Pharma? What is ISIS working on that will compliment this NP03 therapy? What about other mood stabilizers? Bottom line, work with your doctor and find the best drug solution for your patient

PRE-RECORDED  Tonight, our incredible special guest is Dr. Beth John, doctor of chiropractic with 22 years’ experience treating patients using gentle chiropractic techniques as well as the more traditional techniques. Dr. John is also a certified nutritionist and owns The Safa Center, a holistic health center in Farmingdale on Long Island, NY. The Safa Center offers: Chiropractic care, nutritional consult, Chinese herbal consult, Edgar Cayce analysis and appliances, and Safa. What is Safa you ask? We will be talking about that in just a few minutes. Sit back… you are listening to The HD View with Dr. Beth John.   CONTACT: Dr. Beth John The Safa Center PHONE: 516-249-2310 EMAIL: [email protected] WEBSITE: www.TheSafaCenter.com/ FACEBOOK: www.facebook.com/events/495816790444762/