Help 4 Hd Live!

SPECIAL GUEST: Matty Ellison from the UK….SUBJECT: Matty is working hard on a new project called the Huntington’s Disease Youth Organization (HDYO). HDYO will support young people from the HD community all over the world….Launching in late 2011, HDYO will be the first organization to specifically support young people from the HD community. The HDYO website will provide support, educational information and videos about HD, stories of young people’s experiences with HD and support forums will all be provided. It will also be available in a variety of languages, providing a place for young people from all over the world to connect and receive much needed support…..Why do young people from an HD family need support? HD is a devastating neurological disorder. The affects of HD on a family are enormous. Young people in particular face a tough time often having to watch a parent slowly deteriorate over many years. Many young people from the HD community provide care for their parent. Most will have lost other family