Bloodstream

Patrick and Amy are joined by three of the most prolific and committed rare disease podcasters out there: Effie Parks from Once Upon A Gene, Kyle Bryant from Two Disabled Dudes, and Bo Bigelow from Stronger Every Day. Those three titans behind the mic join us for a candid discussion about patient centricity, we touch on some recent news, FLOW’s Jessica Lauren Richmond is back with the latest installment of The Well.   Show Notes: Subscribe to: Once Upon a Gene 2DD Stronger Everyday   Recent novel therapy news:   CSL Behring gene therapy makes comeback after hold for FDA priority review   BioMarin delays planned FDA filing for hemophilia gene therapy   FDA Grants Breakthrough Therapy Designation to BIVV001 for Hemophilia A Treatment   Presenting Sponsor: Takeda. Visit bleedingdisorders.com to learn more.   The Bloodstream Podcast is brought to you in part by a new campaign from CSL Behring called Portraits of Progress. To learn more, check out www.PortraitsofProgress.com    Subscribe to BloodStream Podcas