Special Fathers' Network Podcast

Our guest this week is David Ross of Little Hampton, England. David is a rare disease advocate for mens mental health. He plans and hosts valuable international support calls focused on men in the rare disease community. David also has a rare disease himself called Cowden Syndrome, a rare genetic inherited condition. People with Cowden syndrome often have many noncancerous, tumor-like growths. They may also have an increased risk of developing certain cancers. Experts estimate it affects 1 in 200,000 people. The condition often goes underdiagnosed because some healthcare providers may not recognize its symptoms.David reflects on the relationship with his daughter and the importance of communicating with loved ones and friends as part of confronting the challenges associated with rare disease and one's own mortality, all on this week’s Special Fathers Network Dad to Dad Podcast.Show Links -Email – [email protected] – https://www.linkedin.com/in/david-ross-844965171/Eurodis Rare Diseases Europ