Special Fathers' Network Podcast
Dad to Dad 258 - Ben Mattlin of Los Angeles, CA, Author & Disability Advocate Reflects On Life Over 60 Years With Spinal Muscular Atrophy
- Autor: Vários
- Narrador: Vários
- Editora: Podcast
- Duração: 0:50:56
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Sinopse
Our guest this week is Ben Mattlin of Los Angeles, CA a disability advocate, an author, educator and writer. Ben was born in New York City in 1962 with Spinal Muscular Atrophy (SMA), a congenital muscle weakness. He attended the Walden School, Rudolf Steiner High School, and Harvard University, graduating cum laude.Ben and his wife, Mary, have been married for 34 years and are the proud parents of two adult daughters. Ben is a freelance writer and frequent contributor to Financial Advisor magazine. His writings have appeared in the New York Times, LA Times, and The Washington Post, to name a few.He is also the author of: three books Miracle Boy Grows Up (2012), In Sickness & In Health (2018), and Disability Pride: Dispatches From A post-ADA World. (2022) Ben reflects on being mainstreamed educationally, his objections to being labeled and misrepresented by the National MDA as a youth and how he has gone on to live a full and rewarding life as a husband, father and being gainfully employed, despite being c